Don’t over crowd me, don’t get too close, don’t close me in or back me in a corner, don’t trap me into a long conversation or press me too hard about anything or try to get me to go somewhere I don’t want to go, don’t answer for me unless I ask you to do so, don’t waste my time, don’t bug my last nerve, don’t chew with your mouth open and don’t smack your lips, don’t be a dick/witch to me, don’t assume I’m done talking because I pause a moment, don’t think I’m stupid because I am unable to do something you are able to do, don’t think I want your pitty when I open up to you and tell you my dx’s, don’t lie to me, don’t be a shit/fake friend, don’t talk politics or religion and don’t judge me.
I know I’ve been MIA for a good while, just haven’t had the words at the tip of my fingers lately though I’ve wanted and tried many times to gather my thoughts but they are just running so wildly like a kid without their ADHD medication though I wonder if maybe that could be what I need to keep my thoughts from running so out of control so that maybe I could freely think on one thing at a time.
In the time that I have been gone I’ve come to realize that I’m a bit complicated, can’t believe I’m saying this but I do believe my dx of Bipolar is correct though yes I am an aspie and I’ve come to the realization that the two can co-exist and I’m fine with that. Thing is though is other people, I don’t think they are ok with anyone who are different from the “norm”, who have “issues” and real problems. It’s unfortunate for them, sure I am different and yes I am odd and weird as well as have some complicated issues to deal with on a daily basis but doesn’t mean I don’t have real feelings or that I don’t feel the same as anyone else. I wish I could walk away from some of the things that hurt or bother me but it’s never a simple thing and never will be.
So, I’m still here and I’ll post again soon.
It’s been too long since I’ve been here to post anything, just been busy with this thing called life and speaking of such life I must pause a moment in one we lost most recently, one who held my teen years hostage in his songs, Prince. Whether you liked him or not no matter but it was still a life lost.
Anyways, as I had mentioned it’s been a long time since I’ve come here to post and I totally missed posting on here during April, Autism Awareness Month and I’m a bit bummed about that as I had plans to post more awareness for females on the spectrum but I know I can always post so I’m not that bummed about that. There still needs to be more awareness about females on the spectrum so that girls aren’t left behind as I was. I didn’t know until I was 42 that I had Asperger’s Syndrome. Had I known or even my mom known when I was a girl in elementary school maybe I could’ve had more help towards my emotions, moods, anxieties and phobias. Course my mom had me evaluated and tested back when I was in 3rd grade in the early 80’s, they told my mom I was just a little slow and had some learning difficulties in the area of math, some speech problems, memory issues and difficulties understanding of sarcasms and idioms where I took them literally. I had help in math up until 10th grade as I didn’t require any more credits in math and I had speech up until 8th grade. I was so embarrassed to be in those classes and afraid that other students would find out and I would be laughed at, though no one ever found out thankfully.
Coming here to voice my opinions and tell my life story helps in some ways, though not completely as I have deep, very deep wounds from my parents and how I was raised. I never got “beatings” but let’s say words cut deeper than any spanking and they last forever. I think so much about those words all the time especially during certain times.
Lastly, I’ve learned that getting older stinks! Ok, until next time which I hope I won’t take forever to return to bore you with a little humor, maybe dry at times but I hope not. Good day 😉
Today in my therapy session, ok so yea I need therapy to help me cope with my perceptions, anxieties, moods, some anger and my sometimes overwhelming meltdowns (the ones where I harm myself, I’ve wrote about this before in another post but briefly to touch on it I do on occasion harm myself during an intense meltdown. Say for instance if I got extremely upset or angered about something missing and not finding it where I had it after awhile of searching or a small disagreement with my husband I will get a handful of my hair all the way to the root and pull hard, not out but hard and then mess up my hair, scream harshly while open handed hit my head on both sides and sometimes I will also scratch my face from my forehead to down my neck…all while standing then after I will sit and cry while rocking).
So today while the therapist and I were talking she had begun to tell me that being an aspie I appear to have it all together than some but I began to get a little emotional and she asked what’s wrong I told her that actually it’s just what it appears to be though, sure I get that others are more different than myself, all of us aspies are very different and even each person is different as well…if we were all alike this world would be very boring, that’s my look on it anyways! But, I said that even though it appears that I have it all together I really don’t I just make it look like I do.
Have you ever seen a little comic/cartoon drawing of a door, on one side there’s a small scribble then the door and on the other side of the door a huge dark messy scribble…small one says “this is what I say” and the big one says “this is what I want to say”?? That’s me always! I never say 99.9% of what I really want to say, never have and most likely never will.
So, do I have it all together?? No but that’s in my eyes only apparently.
All my life, well as far back as I can remember, I’ve always worried about something. Actually my mom and many others who’ve took notice to it have always said I was a worry wart, thought I’ve always took that as a sort of “name calling” and kind of stung my feelers in a round about way which now looking back my aspieness had a play in that but I didn’t know that then.
I pretty much worry about everything, if you can think of it well I worry about that. I’m pretty certain that my worrying has a huge part in my panic attacks and at times it can be pretty bad so much so that it’s hard to breathe, I begin to sweat and sometimes I will sweat until the situation I’m in and worrying about is over and I’m out of the situation, I’ll have the nervous shakes and get that fight or flight going on in my mind and body.
I do go to therapy every week, she wants me to do breathing exercises and some other things but when your in a big panic and completely worried about something at that moment I’m not going to remember crap other than get out of the situation! I must say just before my attack gets so bad I do try some breathing but the more the situation gets bigger or out of hand the worse I get. Eventually I hope that some techniques will help but it’s going to take many many times using them before it clicks with me.
You know many people see their diagnosis as being labelled and they hate it but for me being diagnosed at 42 (2014) I actually welcome it though I’m still learning even though my boys were diagnosed with Asperger’s and others and I’ve learned about them but it’s different when it’s yourself. I wish I had been diagnosed as a child I would have begun some therapy then but back when I was a child they just called it being slow and learning disabilities, no therapy, just some services in school and that was it even though Asperger’s was already in the books but no one knew about it because it wasn’t well known as it is now but it was widely known that it was just boys but it is now known to be girl’s as well.
For now I’m ok with my diagnoses but wish it wasn’t so difficult some times.
We all have things that we enjoy, like doing, items that are our favorites, movies we love, food we like and some have addictions to their passions but for us aspies its much stronger and not easily to move past or go to another activity. It’s almost like being in school really, we study our passions, likes and loves so much so that we know the names of every person who created it or know just how it was made down to the last small detail and know how to modify it better or know the entire collection and can name them from memory with just one glance.
Since my boys were dx’d (diagnose, diagnosed, diagnosis) at 4 1/2 and 3 I’ve learned all there is about Star Wars, something I thought I knew about more than my oldest since it came out when I was a little girl but he has “studied” it closely since he was 2 as well as Lego’s, which I think my feet and knees know more about pain than playing or as my oldest would say “it’s not playing it’s constructing”. Then there is his, my oldest, most favorite activity drawing and he has been doing that since he could hold a crayon! At first it was just stick people, odd looking stick people and when he started school you would see all these scribbles and odd looking stick people on his papers, well not just in one little spot or location but ALL over along the edges of the papers though I have to say he did learn too and oddly enough his teachers didn’t mind all that much.
Now my youngest, he was never really “hooked” on anything like his brother was but when he learned to read he learned to really enjoy his books. He really loves science and history, he really retains what he has learned in class and brings it home which he will continue to talk about for weeks if not months about it. When he was dx’d at 3 he just started talking but you couldn’t understand a word he was saying and now he talks nonstop, I love hearing him talk about his passions because there was a time I didn’t understand him and now its just wonderful. He is dx’d with Autism and Asperger’s because he showed sign’s for the “classic Autism” per the DSMIV (at the time, before DSMV came out) but didn’t fit in all the “boxes” for a full Autism dx.
As far as myself goes, yea I know shocker but if you read my profile and other posts you’d know I am an aspie too. Course I wasn’t dx’d until I was 42, only a year ago, but I’ve always known I was different from the rest of my peers, that something was different with me but I couldn’t understand why I was, I just knew I was. My passions, likes, loves and addictions are different, though I think that maybe all us aspies passions, likes, loves and addictions are different. As I’ve said to my kids and others before, “if we were the same we would be boring, but we are different and that makes us interesting”, whether others or well NT’s see it that way or maybe they think we are boring that’s their loss.
I love researching, usually anything really but more for my family history and other history throughout time. My husband says I have an addiction to stationary, ok so maybe I do, I love good pens and paper or notebooks and I’m constantly putting things in ABC order! I love the smell of old homes, for some reason it feels like I had been there once before long ago but I wasn’t.
I kinda feel as though maybe I got off topic in a few spots here and there but that’s just how my mind works, hard to concentrate on the same thing for me but I don’t know maybe it will help in some form for another mom who is seeking comfort in knowing shes not alone on her journey or help a teen think more that “so what” if they are different, different is good and boring is bad. On to more female aspie awareness.
Ya know some people ask me, if knowing that you have Asperger’s now is better than had you known all your life since childhood??? My answer is this, I’m 42 and just diagnosed back in January, even though I wasn’t diagnosed in my childhood years makes no difference now because I’ve always known I was odd and different from other girls.
Then too, back when I was a child Asperger’s was not talked about, doctors wasn’t as informed, teachers had no idea and of course parents as well as everyone else thought we were spoiled brats, strange, mentally challenged and out of control at times. Though Asperger’s has been around a long time, just not well known as it is today and even now for females with Asperger’s it’s still not well known…yet!
I got therapy back when I was a child but only through the school system, nothing outside of that.
These days I do see a counselor, she helps me realize things I need help understanding, helps me understand my meltdowns as sometimes it can be big nasty ones where I do some self harm (sometimes if my meltdowns are big I may open hand smack my head, scratch my arms, throw objects, hit the wall, etc…) and she helps me with every day issues.
Knowing what I know now, hmm, well put it this way can’t change it and it’s not going to disappear or go away so might as well learn and grow from it, pass on what you know to let others know that Asperger’s isn’t just for boys, girls can have it too and that’s what I know now.